LIVING WITH DEMENTIA
Research to improve understanding of the experience of living with dementia and all aspects of dementia care and caring
#livedexperience #qualitative #citizenship #humanrights
Katie Gambier-Ross is a final year PhD student at the University of Edinburgh. Her current research is funded by the Alzheimer's Society UK and focuses on the everyday lives of people with dementia and the decision-making they (and others) go through when 'going out' and during the potential or actual experiences of being missing. Through discussion groups and walking interviews with people with dementia, she explores how these experiences affect people's sense of identity, purpose, control over their own lives, independence and safety. The findings will be relevant for a range of stakeholders and specifically intend to inform prevention and response strategies deeply informed by the voice of people affected by dementia. More widely, it aims to support people with dementia to live independently in a safe and supportive environment.
In addition to her PhD, Katie tutors on undergraduate and postgraduate courses covering research methods and theoretical underpinnings of health and social science research. She has worked as a research assistant on a range of projects and is heavily involved in research and science communication communities. In 2019, she was a postgraduate representative for Scottish Institute for Policing Research, has been on the organising committee for several conferences and co-founded the International Consortium for Dementia and Wayfinding.
Dr Lucy Stirland
Lucy is a psychiatrist undertaking specialist training in the care of older people. She is also a researcher, having completed a PhD in epidemiology at the University of Edinburgh in 2020.
Lucy's research focuses on people who have many co-existing illnesses, particularly those with a mental illness or dementia. She studies the relationships between these conditions using data both from research studies and from the NHS. In her clinical work, Lucy assesses and treats older people with dementia and mental illnesses in the community and in hospital.
Linda is a lecturer in applied life sciences at the University of the Highlands and Islands,
Linda is studying a PhD in Nursing at the University of Dundee investigating person-centred care for older people with dementia. She is currently looking at the formal care of people with dementia living at home to understand how far current practices align with person-centred care principles.
Dr Norman Alm
Norman is an Honorary Research Fellow in Computing at Dundee University. His most recent research areas are computer-based communication support for people with dementia and their carers and computer-based games usable by people with dementia.
Norman was part of a multidisciplinary group that developed CIRCA, a system for supported reminiscence conversations for people with dementia. The same group also developed the Living in the Moment (LIM) games, which were playable without the need for working memory. CIRCA and LIM were taken to the market through a spin-out company.
The BBC RemArc (Reminiscence Archive) system was inspired by CIRCA.
Currently Norman is advising on a project to explore the use of ambient everyday sounds to stimulate reminiscence conversations in people with dementia.
Research to discover or improve methods to allow neurodegenerative diseases to be detected earlier and more accurately.
The foundation for the development of
effective treatments for neurodegenerative diseases
Focussing on the prevention of neurodegenerative diseases and their progression to develop symptoms as observed in dementia